How I bootstrap my life in 4 simple steps
When you have a down day, or even several down days, it can seem difficult to pull yourself out of the negativity. As I am not a doctor, or a...
Fatigue: 3 tips to overcome guilt (with a bonus tip too)
Fatigue is difficult. It is a common symptom of MS, an invisible beast which has two ways of attacking. Sometimes it ambushes you suddenly, with no warning, or it gently...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Depression in Multiple Sclerosis: Is it inevitable?
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at...