It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its ugly head, causing me to have less energy to do the things I would like to do. Besides this, some medications I have been taking …
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility Read More »
On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health landscape by creating businesses which, if successful, can change the health landscape. This appears to be inclusive, and I attended, hoping they could support my …
Excluded, again, by the people who say they want to include us Read More »
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
On the 24th April I decided to embark on a massive challenge, to write a blog post every day for 100 days. Over the last 23 days I have written 21 posts, missing two days. One of which was yesterday. I have really enjoyed the process of having to write, share the content, and then …
How I make a difficult decision because of chronic illness Read More »
The last week has been very busy for me. I have had three trips to Galway and I am up against deadlines on a few projects. So I have had to be very careful about pacing, which I am succeeding in, mainly. Yesterday, I decided to write a very short post, so I would not …
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First the usual testing of my eyesight, then a scan of the back of my eye and then deciding on a pair of glasses, or in …
Invisible Symptoms: The impact of a delay on pain and mobility Read More »
