COVID 19

2021 Patient Advocacy & Me, what an amazing year

2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …

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Malaga Airport: Treats the disabled like trash

Over the years, I have written a few posts about travelling with mobility issues. Usually they are informative (I hope) and generally positive. Recently I travelled to Malaga for a holiday. It was a tricky decision because of the pandemic, but we decided on balance it would be safe to use air travel and have …

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The Good, The Bad and the Ugly of 2020 – A Chronically Ill Perspective

I am sitting in my car waiting for my partner to finish the weekly shop, wondering how I can start this blog post. 2020 has been a hard year for so many people because of the uncertainty of the Pandemic. It has killed many innocent people, brought financial hardship to service workers, split communities and …

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Resting during my walk

COVID-19 Confinement is finishing, or is it?

It was a warm day yesterday, and I had the chance to sit outside and read. The feel of the sun is fantastic, and I always welcome its feel. Somehow it renews me. The heat is like a charger and it can bring me from nearly depleted to half full. Not bad for an hour …

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Losing everything, again

Losing everything, again!!

It has been five weeks since I left the hospital where I had IV steroids to help with my mobility. When I arrived home, it took a few days to recover from ‘hospitalisation’ and then my new life started. My mobility had improved dramatically while in hospital and it continued to improve once I arrived …

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