More pain and fatigue, because I did not pace myself
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
Chronic Headaches
Pain is expensive: A day in my life
The last week has been very busy for me. I have had three trips to Galway and I am up against deadlines on a few projects. So I have had to be very careful about pacing, which I am succeeding in, mainly. Yesterday, I decided to write a very short post, so I would not …
Invisible Symptoms: The impact of a delay on pain and mobility
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First the usual testing of my eyesight, then a scan of the back of my eye and then deciding on a pair of glasses, or in …
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Visiting the Optician: 4 things to remember if you have photophobia
Today I will be getting my eyes checked, as I wear glasses. If I remember correctly, I was about 14 when I started to need them. The writing on the blackboard at school was getting very fuzzy. Now I am 52 I need to take off my glasses to read, age does creep up on …
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Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Depression in Multiple Sclerosis: Is it inevitable?
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at 3 in the afternoon. My limbs have been heavier, where trying to lift my arm takes effort. Walking, taking longer, slower every day, struggling to …
Depression in Multiple Sclerosis: Is it inevitable? Read More »
