“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must come back tomorrow to see the neurology team, and we will start you on steroids.” I shook with rage. It had become too much. The …
Hospitals: Are they for patient care or doctors careers? Read More »
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
On the 24th April I decided to embark on a massive challenge, to write a blog post every day for 100 days. Over the last 23 days I have written 21 posts, missing two days. One of which was yesterday. I have really enjoyed the process of having to write, share the content, and then …
How I make a difficult decision because of chronic illness Read More »
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First the usual testing of my eyesight, then a scan of the back of my eye and then deciding on a pair of glasses, or in …
Invisible Symptoms: The impact of a delay on pain and mobility Read More »
Today I will be getting my eyes checked, as I wear glasses. If I remember correctly, I was about 14 when I started to need them. The writing on the blackboard at school was getting very fuzzy. Now I am 52 I need to take off my glasses to read, age does creep up on …
Visiting the Optician: 4 things to remember if you have photophobia Read More »
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
