Yesterday I was at a meeting, which was discussing policy. This seems quite abstract as I write it, and perhaps it is. What happens once a policy is written? If it is a large organisation it acts as a rudder, guiding the activities of sections of the activity. This will have an impact on the …
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should be equal members of the research team, deciding what will be researched and how the research is conducted. The phrase we often use is: Nothing …
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient Involvement in research. 17 years ago I tried to get the Irish government to trial a medicine which I have found works well at treating …
Sharing my experience of being a Patient Advocate Read More »
The Bitter We have a 17 year old female Siamese cat. She rules the house, dictating many of our activities. Age comes with more medical issues and cats experience this too. Arthritis is Gucia’s problem and she has been licking all her joints, in an effort to ease the pain, to the extent most of …
The sun was shinning yesterday and the heat was glorious. As a result I spent a good part of the day outside. It felt like I was on a Mediterranean beach and as Dr Conor Kerley mention in the Progressive MS Webinar we recorded last week, the sun is great for producing natural Vitamin D. …
Chronic illness takes many things away from you, things you love or even need. This is devastating and has a negative impact on mental health. I have experienced this many times. The days when I just do not want to get out of bed and the thought of doing anything is just too much. It …
Mental Health: Using projects to increase my vitality Read More »
