I am a participant in a new study that is being conducted by the Centre for Pain Research, National University of Ireland – Galway, and the MS Society of Ireland about the benefits of mindfulness in treating MS. This research is being conducted online, and they are actively looking for Continue Reading
It can feel like banging your head against a brick wall, whether you are helping a family member, or you are trying to get through to a friend, if you are doing your best to help someone, but they don’t want our help, the stresses and anxieties of the situation Continue Reading
People living with disabilities often feel inferior and are not treated fairly in the workplace. If you have decided that you would go out on your own instead, however, there will be some difficulties you’d better be prepared to overcome, too. You might not be able to do physical jobs, Continue Reading
Isolation is what I felt last week. I was writing in my journal after finishing my meditation and a wave of sadness enveloped me. I wrote it down. ISOLATION. Since that day I have been thinking about this. Wondering why I felt that way. What causes this, and what can Continue Reading
Carpe Diem Carpe Diem or Seize the Day is a maxim that people with chronic illness usually follow. Every day brings surprises, some good, some bad. This is a day that something good happened, and I grabbed it with both hands. On Wednesday I had a great plan. Creating an Continue Reading
Travel can be difficult when you have a chronic illness. Needing to plan and prepare for the obstacles that are common for your illness. This is how I live within the rules of my disease. Travel to Dublin Today I attended a meeting of the MS & Me blogging group. Continue Reading
Grateful for all that I have This afternoon I was sitting in my cave (or more grandly, my office) thinking about what I will write about for my post this week. This den that I have is the place where I meditate 5 mornings of the week, and where I Continue Reading
Back from holiday
Yesterday I returned from a 10 day holiday in Poland.
Holidays can be difficult if you have a chronic illness. They need a little more planning, and recovery time during, and after, the trip. Since my last holiday, my walking has become much slower. Before going on this trip I was anxious about a few things. They were, first my mobility. Would I be able to walk around the cities that we were visiting? The second issue was fatigue. I am constantly tired, and activity makes this worse, so I was apprehensive about the effect that it would have on what I could do. The third issue was accessibility, of services and of toilet facilities.
I have learned to prepare better for a trip than I did when I was much healthier. When I was abler I would wing it. Taking a chance on things, and rolling with the consequences. I enjoy the surprises that this brings, and sometimes the stories are worth the discomfort. This holiday I was not taking too many chances. So what did I do to avoid unpleasant experiences?
6 Habits to help you live with chronic illness At this time of year, people are looking at the year ahead and making resolutions about the changes that they want to make. In my experience, this idea of change in the new year doesn’t always work. 2017 was a very mixed Continue Reading
Christmas is coming Christmas, or any holiday time, is usually a cause of stress for people with chronic illnesses. One thing that we need in life is big changes from our usual routine. This stability creates a balance in our illness. Any deviation in this can lead to unpleasant consequences. Continue Reading