Grateful for all that I have

Just the right amount of snow

Grateful for all that I have This afternoon I was sitting in my cave (or more grandly, my office) thinking about what I will write about for my post this week. This den that I have is the place where I meditate 5 mornings of the week, and where I Continue Reading

Living with chronic illness – Holiday

Back from holiday

Yesterday I returned from a 10 day holiday in Poland.

Holidays can be difficult if you have a chronic illness. They need a little more planning, and recovery time during, and after, the trip. Since my last holiday, my walking has become much slower. Before going on this trip I was anxious about a few things. They were, first my mobility. Would I be able to walk around the cities that we were visiting? The second issue was fatigue. I am constantly tired, and activity makes this worse, so I was apprehensive about the effect that it would have on what I could do. The third issue was accessibility, of services and of toilet facilities.

Gdansk at Night
Gdańsk at Night

I have learned to prepare better for a trip than I did when I was much healthier. When I was abler I would wing it. Taking a chance on things, and rolling with the consequences. I enjoy the surprises that this brings, and sometimes the stories are worth the discomfort. This holiday I was not taking too many chances. So what did I do to avoid unpleasant experiences?


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6 habits to help you live with chronic illness that I learned in 2017

6 habits learned in 2017

6 Habits to help you live with chronic illness At this time of year, people are looking at the year ahead and making resolutions about the changes that they want to make. In my experience, this idea of change in the new year doesn’t always work. 2017 was a very mixed Continue Reading

Christmas and chronic illness

Merry Christmas

Christmas is coming Christmas, or any holiday time, is usually a cause of stress for people with chronic illnesses. One thing that we need in life is big changes from our usual routine. This stability creates a balance in our illness. Any deviation in this can lead to unpleasant consequences. Continue Reading

Living with Chronic Illness – Winter is Coming

Living with Chronic Illness - Winter is Coming

Winter is Coming On Tuesday I was out at work. My work is doing market research surveys, and I go from door to door, seeing if I can get someone to be a respondent for my survey. I enjoy this job and the people that I meet and it is Continue Reading

Living with Pain – The new ‘normal’

Living with Pain – The new ‘normal’ Living with pain is a huge pain in the neck. it is my new ‘normal’. I have had constant pain for the last 3 years as a result of a car crash. It presented itself to me the day after the accident, and Continue Reading

Living With MS – Accepting the Challenge

Living with MS – Accepting the Challenge Accepting the challenge of living with MS is a choice that you have to actively make. 25 years ago when I was diagnosed was when I first realised that this disease required a different mindset to what I had coming out of university, Continue Reading