2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …
2021 Patient Advocacy & Me, what an amazing year Read More »
When you have a down day, or even several down days, it can seem difficult to pull yourself out of the negativity. As I am not a doctor, or a mental health expert, I can only let you know what works for me. You should always consult an expert. With this disclaimer done I can …
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …
Why learning to be a Patient Expert has given me a purpose in life. Read More »
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was a year and a half ago. Sativex helps with my mobility, but its cost is prohibitive, and now I only use it occasionally when I …
How Patient & Public Involvement is giving me purpose. Read More »
In this post I reflect on 2019 and the obstacles I faced, how I dealt with these, and what I learned in the process. Now, more resilient, I look forward to the New Year!!
Following on from A life changing trip? San Francisco – Part 1 Where I shared the concerns I had about travelling a big distance, here I share some things I did on holiday. Harley and Me I am 50 and it is about time I had a good mid life crisis. Being in the USA …
