For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …
Is Patient Centred Healthcare wanted by the Irish health system? Read More »
I stood, facing the wind, as it brought the southerly warmth all around me. As it surrounded me, I felt joy and gratitude that I could once again walk. Over the last several months, I had stopped my walk, as it was not possible anymore. My legs had been wrapped in the weight of MS. …
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must come back tomorrow to see the neurology team, and we will start you on steroids.” I shook with rage. It had become too much. The …
Hospitals: Are they for patient care or doctors careers? Read More »
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its ugly head, causing me to have less energy to do the things I would like to do. Besides this, some medications I have been taking …
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility Read More »
On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health landscape by creating businesses which, if successful, can change the health landscape. This appears to be inclusive, and I attended, hoping they could support my …
Excluded, again, by the people who say they want to include us Read More »
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First the usual testing of my eyesight, then a scan of the back of my eye and then deciding on a pair of glasses, or in …
Invisible Symptoms: The impact of a delay on pain and mobility Read More »
