For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre...
I stood, facing the wind, as it brought the southerly warmth all around me. As it surrounded me, I felt joy and gratitude that I could once again walk. Over...
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must...
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its...
On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health...
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First...
