Multiple sclerosis: The rules of my illness have changed
How do you adjust your life when the rules of your illness change? I share what I am doing now.
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2021 Patient Advocacy & Me, what an amazing year
2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …
2021 Patient Advocacy & Me, what an amazing year Read More »
More pain and fatigue, because I did not pace myself
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
Rainy days: Are they good or bad?
A heard of wildebeest was thundering over my head. Luckily I had found shelter under an overhanging rock. Looking around, I saw a few small bones, some scratched lines on the wall, and knew I was not the first to escape under this stone. The smell of these animals was surrounding me and I wondered …
5 tips to help overcome cognitive problems
More than 50% of people living with Multiple Sclerosis will have some cognitive problems in their life. Because I live with chronic pain, Persistent Post Traumatic Headaches, and fatigue, I also have cognitive problems. This impacts me in many ways, forgetting things, short term memory issues, word finding problems and holding conversations. As these symptoms …
How I bootstrap my life in 4 simple steps
When you have a down day, or even several down days, it can seem difficult to pull yourself out of the negativity. As I am not a doctor, or a mental health expert, I can only let you know what works for me. You should always consult an expert. With this disclaimer done I can …
