For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …
Is Patient Centred Healthcare wanted by the Irish health system? Read More »
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must come back tomorrow to see the neurology team, and we will start you on steroids.” I shook with rage. It had become too much. The …
Hospitals: Are they for patient care or doctors careers? Read More »
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its ugly head, causing me to have less energy to do the things I would like to do. Besides this, some medications I have been taking …
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility Read More »
2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …
2021 Patient Advocacy & Me, what an amazing year Read More »
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should be equal members of the research team, deciding what will be researched and how the research is conducted. The phrase we often use is: Nothing …
Pic Source – CCO Licence While it is not something that you would wish upon anyone, in fact there are plenty of people with disabilities who do end up living full and happy lives. One of the great movements of recent years has been to show that having a disability is not necessarily the be-all …
