For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre...
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must...
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its...
2021 Patient Advocacy & Me What an amazing year 2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good...
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Pic Source - CCO Licence While it is not something that you would wish upon anyone, in fact there are plenty of people with disabilities who do end up living...
