Multiple sclerosis: The rules of my illness have changed
How do you adjust your life when the rules of your illness change? I share what I am doing now.
SPMS
Yahoo, I am walking again.
I stood, facing the wind, as it brought the southerly warmth all around me. As it surrounded me, I felt joy and gratitude that I could once again walk. Over the last several months, I had stopped my walk, as it was not possible anymore. My legs had been wrapped in the weight of MS. …
The birthday gift I would like to give back!!
Thirty years ago, today, I was diagnosed with Multiple Sclerosis. In the previous November I was in Queens Square London getting a battery of test done. This included an MRI (Magnetic Resonance Imaging) and a lumbar puncture (LP). The MRI was a new diagnosis test at the time, as they had just started to use …
2021 Patient Advocacy & Me, what an amazing year
2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …
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Malaga Airport: Treats the disabled like trash
Over the years, I have written a few posts about travelling with mobility issues. Usually they are informative (I hope) and generally positive. Recently I travelled to Malaga for a holiday. It was a tricky decision because of the pandemic, but we decided on balance it would be safe to use air travel and have …
Sharing my experience of being a Patient Advocate
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient Involvement in research. 17 years ago I tried to get the Irish government to trial a medicine which I have found works well at treating …
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