For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …
Is Patient Centred Healthcare wanted by the Irish health system? Read More »
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must come back tomorrow to see the neurology team, and we will start you on steroids.” I shook with rage. It had become too much. The …
Hospitals: Are they for patient care or doctors careers? Read More »
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should be equal members of the research team, deciding what will be researched and how the research is conducted. The phrase we often use is: Nothing …
To say I am angry is an understatement. Yesterday when I arrived home, fully of optimism about our country and its desire to put the patient (I am writing a post about this too), to find a letter from Social Welfare. Readers of my blog know I have Multiple Sclerosis, and I have the Secondary …
Can you take a holiday from DISABILITY? The Irish Government thinks I can!! Read More »
There are times in life where you see a massive difference in the way two similar organisations approach a situation. Last week I had an experience which both angers me, and saddens me, at the same time. The contrast was stark. People with disabilities travel. We use cars, trains, boats, buses and airplanes to help …
Is Dublin Airport the leader in disability services? Read More »
In the last few days the government of Ireland announced its goals in tackling Climate Change. They ranged from the use of plastics to home insulation, all to reduce the damage we are doing to the environment. One area of interest to me is transport, especially for those of us who require adaptations compared with …
