2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good and bad. For now, we do not know what further impact it will have, but I know its impact on me. In this post, I am going to share how it has helped shape …
2021 Patient Advocacy & Me, what an amazing year Read More »
How do you adjust your life when the rules of your illness change? I share what I am doing now.
For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …
Is Patient Centred Healthcare wanted by the Irish health system? Read More »
Guest Post Could a change in diet make a difference for people with multiple sclerosis (MS)? Those are the questions our research team investigates. So far our answer is yes. Diet can reduce fatigue, improve quality of life and walking function for both relapsing-remitting MS and progressive MS. We have conducted several pilot studies which have …
Terry Wahls Diet Study for people living with Multiple Sclerosis Read More »
I stood, facing the wind, as it brought the southerly warmth all around me. As it surrounded me, I felt joy and gratitude that I could once again walk. Over the last several months, I had stopped my walk, as it was not possible anymore. My legs had been wrapped in the weight of MS. …
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must come back tomorrow to see the neurology team, and we will start you on steroids.” I shook with rage. It had become too much. The …
Hospitals: Are they for patient care or doctors careers? Read More »
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its ugly head, causing me to have less energy to do the things I would like to do. Besides this, some medications I have been taking …
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility Read More »
