Getting sick, when you are already ill

Feeling Sick

Coming Home Life is unpredictable. I have no idea what will happen tomorrow, and when you have a chronic illness this adds an extra level of uncertainty into the mix. Last Monday I returned from my holiday, and I expected that I would need 2-3 days to recover from the Continue Reading

Living with chronic illness – Holiday

Back from holiday

Yesterday I returned from a 10 day holiday in Poland.

Holidays can be difficult if you have a chronic illness. They need a little more planning, and recovery time during, and after, the trip. Since my last holiday, my walking has become much slower. Before going on this trip I was anxious about a few things. They were, first my mobility. Would I be able to walk around the cities that we were visiting? The second issue was fatigue. I am constantly tired, and activity makes this worse, so I was apprehensive about the effect that it would have on what I could do. The third issue was accessibility, of services and of toilet facilities.

Gdansk at Night
Gdańsk at Night

I have learned to prepare better for a trip than I did when I was much healthier. When I was abler I would wing it. Taking a chance on things, and rolling with the consequences. I enjoy the surprises that this brings, and sometimes the stories are worth the discomfort. This holiday I was not taking too many chances. So what did I do to avoid unpleasant experiences?


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Living with Chronic Illness – Back to Work

Back to Work

Back to Work So tired. Getting up in the morning is a struggle. Since returning to work on the 6th I have had to do 2 days work. My work usually takes 6 hours in the day, with an extra 2 hours of commuting. I have to do 8 surveys Continue Reading

6 habits to help you live with chronic illness that I learned in 2017

6 habits learned in 2017

6 Habits to help you live with chronic illness At this time of year, people are looking at the year ahead and making resolutions about the changes that they want to make. In my experience, this idea of change in the new year doesn’t always work. 2017 was a very mixed Continue Reading

DizzyCast Episode 2


Dizzycast DizzyCast on SoundCloud Episode 2 of Dizzycast is here! 🙂 A Diagnostic Dizzy. In this months episode we have a chat with Christian Rolfe about his journey from RRMS to SPMS, and a recent trial that he has been on for this. Then for Dizzy Discussion we are joined Continue Reading