How I bootstrap my life in 4 simple steps
When you have a down day, or even several down days, it can seem difficult to pull yourself out of the negativity. As I am not a doctor, or a...
Willpower: Could it be speeding up my decline?
Just one more step. It was the only thought in my head. One more. If I can lift my leg, move it forward, even just a bit, and then repeat...
Fatigue: 3 tips to overcome guilt (with a bonus tip too)
Fatigue is difficult. It is a common symptom of MS, an invisible beast which has two ways of attacking. Sometimes it ambushes you suddenly, with no warning, or it gently...
Can one voice change anything?
Yesterday I was at a meeting, which was discussing policy. This seems quite abstract as I write it, and perhaps it is. What happens once a policy is written? If...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Sharing my experience of being a Patient Advocate
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient...