Multiple sclerosis: The rules of my illness have changed
How do you adjust your life when the rules of your illness change? I share what I am doing now.
Patient Engagement
Is Patient Centred Healthcare wanted by the Irish health system?
For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …
Is Patient Centred Healthcare wanted by the Irish health system? Read More »
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its ugly head, causing me to have less energy to do the things I would like to do. Besides this, some medications I have been taking …
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility Read More »
Patient engagement: How one pharmaceutical company is failing to adapt.
There is an increasing desire in the research community (public and private) to include patients throughout the medicines development process. This involves a big change is the way these organisations interact with us. It is a challenge, as working with the public and patients often requires a different way of preparing for and organising of …
Patient engagement: How one pharmaceutical company is failing to adapt. Read More »
