2021 Patient Advocacy & Me, what an amazing year
2021 Patient Advocacy & Me What an amazing year 2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good...
How I bootstrap my life in 4 simple steps
When you have a down day, or even several down days, it can seem difficult to pull yourself out of the negativity. As I am not a doctor, or a...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
How Patient & Public Involvement is giving me purpose.
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was...
Reflecting on 2019 and looking forward to 2020
In this post I reflect on 2019 and the obstacles I faced, how I dealt with these, and what I learned in the process. Now, more resilient, I look forward to the New Year!!
A life changing trip? San Francisco – Part 2
Following on from A life changing trip? San Francisco - Part 1 Where I shared the concerns I had about travelling a big distance, here I share some things I...