My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …
Why learning to be a Patient Expert has given me a purpose in life. Read More »
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at 3 in the afternoon. My limbs have been heavier, where trying to lift my arm takes effort. Walking, taking longer, slower every day, struggling to …
Depression in Multiple Sclerosis: Is it inevitable? Read More »
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was a year and a half ago. Sativex helps with my mobility, but its cost is prohibitive, and now I only use it occasionally when I …
How Patient & Public Involvement is giving me purpose. Read More »
Following on from A life changing trip? San Francisco – Part 1 Where I shared the concerns I had about travelling a big distance, here I share some things I did on holiday. Harley and Me I am 50 and it is about time I had a good mid life crisis. Being in the USA …
Everyone wants to live as happy a life as possible. But it is one thing wanting this, and quite another to know what is actually involved in making it happen. There are many things that can get in the way of your happiness, and the more aware you are of those hurdles, the more likely …
Mornings are the best part of my day, when the realisation of my physical state has not registered. Eating a leisurely breakfast, followed by coffee, brewed from just ground coffee. The morning is full of promise, and my day is undecided. After this meal, I put my dishes in the sink, soaking, so I can …
