strategy

Willpower Could it be speeding up my decline

Willpower: Could it be speeding up my decline?

Just one more step. It was the only thought in my head. One more. If I can lift my leg, move it forward, even just a bit, and then repeat with the other leg. My objective, to get back to the car, which was about 50 metres away from me. Every step seemed to push …

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Fatigue: 3 tips to overcome guilt (with a bonus tip too)

Fatigue: 3 tips to overcome guilt (with a bonus tip too)

Fatigue is difficult. It is a common symptom of MS, an invisible beast which has two ways of attacking. Sometimes it ambushes you suddenly, with no warning, or it gently creeps up on you, gradually sucking all strength. Whichever tactic the monster uses, fatigue can contribute to decline in your mental health. Yesterday, I experienced …

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Why learning to be a Patient Expert has given me a purpose in life.

My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …

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Caregiver Stress: Managing Stress When Caring for a Person with Disability

Image Credit  Caring for a sick person can be stressful, and it can get worse if the person lives with a  disability. This is because the disability presents a whole new level of caregiving challenges. Helping the patient into a wheelchair, turning them in bed, or bathing them is a lot of labor.  The stress …

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Depression in Multiple Sclerosis_ Is it inevitable?

Depression in Multiple Sclerosis: Is it inevitable?

The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at 3 in the afternoon. My limbs have been heavier, where trying to lift my arm takes effort. Walking, taking longer, slower every day, struggling to …

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Reflecting on 2019 and looking forward to 2020

Reflecting on 2019 and looking forward to 2020

In this post I reflect on 2019 and the obstacles I faced, how I dealt with these, and what I learned in the process. Now, more resilient, I look forward to the New Year!!

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