Willpower: Could it be speeding up my decline?
Just one more step. It was the only thought in my head. One more. If I can lift my leg, move it forward, even just a bit, and then repeat...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Fear – Is it reasonable to be so afraid?
Surrounded by terrible news. On the TV the presenters are asking when will this lockdown stop, can we survive this, or the world is in crisis. The economists are predicting...
How Patient & Public Involvement is giving me purpose.
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was...