Care system

Excluded, again, by the people who say they want to include us

On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health landscape by creating businesses which, if successful, can change the health landscape. This appears to be inclusive, and I attended, hoping they could support my …

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Fear, is it reasonable to be so afraid?

Fear – Is it reasonable to be so afraid?

Surrounded by terrible news. On the TV the presenters are asking when will this lockdown stop, can we survive this, or the world is in crisis. The economists are predicting global recession, and some are talking about a depression. There are websites counting the deaths, YouTube has channels urging us to prepare for the worst, …

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Should I treat MS while COVID-19 is active?

Should I get treatment now with COVID-19 as a risk?

The hills in Connemara must be growing, and the stairs are longer and steeper. Every step has become a moment of concentration. Before the COVID-19 pandemic had become mainstream, my walking had become worse. My right leg is assisted by Functional Electrical Stimulation, but the intensity of the pulse needs to increase. Because of several …

Should I get treatment now with COVID-19 as a risk? Read More »

Can you take a holiday from DISABILITY? The Irish Government thinks I can!!

To say I am angry is an understatement. Yesterday when I arrived home, fully of optimism about our country and its desire to put the patient (I am writing a post about this too), to find a letter from Social Welfare. Readers of my blog know I have Multiple Sclerosis, and I have the Secondary …

Can you take a holiday from DISABILITY? The Irish Government thinks I can!! Read More »

Excluded, and alone, the Irish government wants this for me.

Angry doesn’t even begin to describe my emotion. Frustrated, disappointed, bewildered, and exhausted can be added to this list. What is causing me to feel this way? The policies of the Irish government, as implemented by the Department of Health, Department of Employment Affairs and Social Protection, and the Department of Housing, Planning and Local Government …

Excluded, and alone, the Irish government wants this for me. Read More »

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