More than 50% of people living with Multiple Sclerosis will have some cognitive problems in their life. Because I live with chronic pain, Persistent Post Traumatic Headaches, and fatigue, I also have cognitive problems. This impacts me in many ways, forgetting things, short term memory issues, word finding problems and holding conversations. As these symptoms …
The day after my car accident I started to hear a constant noise in my ears, particularly my right ear. This is know as tinnitus. For me the sound never stops, but it can change its intensity. When it does, I have an immediate reaction. Another symptom has also grown over the years and this …
Noise Intolerance: 4 strategies I use to manage my reaction Read More »
Just one more step. It was the only thought in my head. One more. If I can lift my leg, move it forward, even just a bit, and then repeat with the other leg. My objective, to get back to the car, which was about 50 metres away from me. Every step seemed to push …
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …
Why learning to be a Patient Expert has given me a purpose in life. Read More »
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at 3 in the afternoon. My limbs have been heavier, where trying to lift my arm takes effort. Walking, taking longer, slower every day, struggling to …
Depression in Multiple Sclerosis: Is it inevitable? Read More »
It has been five weeks since I left the hospital where I had IV steroids to help with my mobility. When I arrived home, it took a few days to recover from ‘hospitalisation’ and then my new life started. My mobility had improved dramatically while in hospital and it continued to improve once I arrived …
