Hospitals: Are they for patient care or doctors careers?
“You want me to come back again tomorrow?” I said through gritted teeth. My cheeks were twitching with pain and I asked, “Are you admitting me?” “No, but you must...
More pain and fatigue, because I did not pace myself
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
How I make a difficult decision because of chronic illness
On the 24th April I decided to embark on a massive challenge, to write a blog post every day for 100 days. Over the last 23 days I have written...
Invisible Symptoms: The impact of a delay on pain and mobility
Medical appointments are a continuous part of living with chronic illness. Yesterday I had to visit the optician about getting new glasses. Usually it is a 30-45 minute visit. First...
Visiting the Optician: 4 things to remember if you have photophobia
Today I will be getting my eyes checked, as I wear glasses. If I remember correctly, I was about 14 when I started to need them. The writing on the...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?