2021 Patient Advocacy & Me, what an amazing year
2021 Patient Advocacy & Me What an amazing year 2021 has been an eventful year. The COVID pandemic is still around and it has changed so many lives, for good...
More pain and fatigue, because I did not pace myself
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
The power of sharing experiences
Recently, I have been involved in two different projects. Both of which involved me sharing some of my experience of living with Multiple Sclerosis. Progressive MS Webinar Series The first...
Can one voice change anything?
Yesterday I was at a meeting, which was discussing policy. This seems quite abstract as I write it, and perhaps it is. What happens once a policy is written? If...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Sharing my experience of being a Patient Advocate
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient...