Patient Advocacy

The Good, The Bad and the Ugly of 2020 – A Chronically Ill Perspective

I am sitting in my car waiting for my partner to finish the weekly shop, wondering how I can start this blog post. 2020 has been a hard year for so many people because of the uncertainty of the Pandemic. It has killed many innocent people, brought financial hardship to service workers, split communities and …

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Why learning to be a Patient Expert has given me a purpose in life.

My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …

Why learning to be a Patient Expert has given me a purpose in life. Read More »

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