Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Depression in Multiple Sclerosis: Is it inevitable?
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at...
COVID-19 Confinement is finishing, or is it?
It was a warm day yesterday, and I had the chance to sit outside and read. The feel of the sun is fantastic, and I always welcome its feel. Somehow...
Should I get treatment now with COVID-19 as a risk?
Should I treat MS while COVID-19 is active? The hills in Connemara must be growing, and the stairs are longer and steeper. Every step has become a moment of concentration....
How Patient & Public Involvement is giving me purpose.
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was...