Patient engagement: How one pharmaceutical company is failing to adapt.

2 Comments / A 30 Minute Life, Patient Engagement, PPI / By

There is an increasing desire in the research community (public and private) to include patients throughout the medicines development process. This involves a big change is the way these organisations interact with us. It is a challenge, as working with the public and patients often requires a different way of preparing for and organising of …

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Excluded, again, by the people who say they want to include us

2 Comments / A 30 Minute Life, Business, Care system, Giving Up, life with MS, Living with Chronic Illness, living with MS, living with multiple sclerosis, Medical system, Multiple Sclerosis, Patient Advocacy / By

On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health landscape by creating businesses which, if successful, can change the health landscape. This appears to be inclusive, and I attended, hoping they could support my …

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The birthday gift I would like to give back!!

Leave a Comment / A 30 Minute Life, Diagnosis, Functional Electrical Stimulation, life with MS, Living with Chronic Illness, living with MS, living with multiple sclerosis, marijuana, mobility, Multiple Sclerosis, Patient Advocacy, RRMS, SPMS / By

Thirty years ago, today, I was diagnosed with Multiple Sclerosis. In the previous November I was in Queens Square London getting a battery of test done. This included an MRI (Magnetic Resonance Imaging) and a lumbar puncture (LP). The MRI was a new diagnosis test at the time, as they had just started to use …

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