PPI |

Is Patient Centred Healthcare wanted by the Irish health system?

5 Comments / A 30 Minute Life, discrimination, Medical system, Patient Advocacy, Patient Engagement, PPI / By Robert

For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre of the healthcare system. I have had positive and negative experiences along the way, and I think have converted some people to engage with the …

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Why learning to be a Patient Expert has given me a purpose in life.

1 Comment / A 30 Minute Life, coping, goal, life with MS, Living with Chronic Illness, living with MS, living with multiple sclerosis, Medical system, Mental health, Multiple Sclerosis, pain, Patient Advocacy, positive, seize the day, SPMS, strategy, Support of community / By Robert

My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple Sclerosis, an illness diagnosed a decade earlier. It was unsuccessful. The principal reason, I think, for my failure was a an absence of knowledge of …

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