Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Depression in Multiple Sclerosis: Is it inevitable?
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at...
COVID-19 Confinement is finishing, or is it?
It was a warm day yesterday, and I had the chance to sit outside and read. The feel of the sun is fantastic, and I always welcome its feel. Somehow...
Losing everything, again!!
It has been five weeks since I left the hospital where I had IV steroids to help with my mobility. When I arrived home, it took a few days to...
Fear – Is it reasonable to be so afraid?
Surrounded by terrible news. On the TV the presenters are asking when will this lockdown stop, can we survive this, or the world is in crisis. The economists are predicting...