Fatigue: 3 tips to overcome guilt (with a bonus tip too)
Fatigue is difficult. It is a common symptom of MS, an invisible beast which has two ways of attacking. Sometimes it ambushes you suddenly, with no warning, or it gently...
Can one voice change anything?
Yesterday I was at a meeting, which was discussing policy. This seems quite abstract as I write it, and perhaps it is. What happens once a policy is written? If...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Sharing my experience of being a Patient Advocate
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient...
The Good, The Bad and the Ugly of 2020 – A Chronically Ill Perspective
I am sitting in my car waiting for my partner to finish the weekly shop, wondering how I can start this blog post. 2020 has been a hard year for...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...