Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Sharing my experience of being a Patient Advocate
This morning I had the honour of presenting to the PPI Ignite PPI Annual Conference. As the first speaker at the meeting I wanted to share how I see Patient...
The Good, The Bad and the Ugly of 2020 – A Chronically Ill Perspective
I am sitting in my car waiting for my partner to finish the weekly shop, wondering how I can start this blog post. 2020 has been a hard year for...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Is Patient Advocacy Worth The Obstacles?
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Depression in Multiple Sclerosis: Is it inevitable?
The last four weeks have been a challenge. The number of days I have had to finish in bed, early, has increased. Often seeking solace in a darkened room at...