The power of sharing experiences
Recently, I have been involved in two different projects. Both of which involved me sharing some of my experience of living with Multiple Sclerosis. Progressive MS Webinar Series The first...
Research vs Social Welfare in Ireland
Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
Why learning to be a Patient Expert has given me a purpose in life.
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Fear – Is it reasonable to be so afraid?
Surrounded by terrible news. On the TV the presenters are asking when will this lockdown stop, can we survive this, or the world is in crisis. The economists are predicting...
Should I get treatment now with COVID-19 as a risk?
Should I treat MS while COVID-19 is active? The hills in Connemara must be growing, and the stairs are longer and steeper. Every step has become a moment of concentration....
How Patient & Public Involvement is giving me purpose.
My legs are a disaster. In the last year I have started using an FES device for my right leg, and my left one is now like my right was...