How do you adjust your life when the rules of your illness change? I share what I am doing now.
Is Patient Centred Healthcare wanted by the Irish health system?
For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre...
Yahoo, I am walking again.
I stood, facing the wind, as it brought the southerly warmth all around me. As it surrounded me, I felt joy and gratitude that I could once again walk. Over...
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its...
Excluded, again, by the people who say they want to include us
On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health...
The birthday gift I would like to give back!!
Thirty years ago, today, I was diagnosed with Multiple Sclerosis. In the previous November I was in Queens Square London getting a battery of test done. This included an MRI...