Yesterday I had the honour of being a keynote speaker at a conference which focused on including patients in research. By this I mean people who live with illnesses should...
I am sitting in my car waiting for my partner to finish the weekly shop, wondering how I can start this blog post. 2020 has been a hard year for...
My first experience of participating in research was over 15 years ago when I tried to get a trial started on a medication I was using to treat my Multiple...
Image Credit Caring for a sick person can be stressful, and it can get worse if the person lives with a disability. This is because the disability presents a whole...
Patient advocacy has many rewards, helping a community and better research are just two. It comes with a cost, and I wonder, is it worth it?
Pic Source - CCO Licence While it is not something that you would wish upon anyone, in fact there are plenty of people with disabilities who do end up living...