Living with chronic illness – Bad Day

Bad Day

Bad Day Last Sunday was a really bad day for me. If you follow me on Twitter you would have seen my post on Monday about how I was dealing with these doldrums by using meditation, and journaling. The previous week I had been having troubles with work. My fatigue Continue Reading

Living with Chronic Illness – Winter is Coming

Living with Chronic Illness - Winter is Coming

Winter is Coming On Tuesday I was out at work. My work is doing market research surveys, and I go from door to door, seeing if I can get someone to be a respondent for my survey. I enjoy this job and the people that I meet and it is Continue Reading

Living with Chronic Illness – Storms in my head

Living with chronic illness

Living with Chronic Illness – Storm in my head Ophelia passed through Ireland on Monday, and we were expecting fierce winds and rain. Most of the country felt the wrath of the hurricane, but in Connemara, we seemed to remain in the eye of the storm. Having a chronic illness Continue Reading

How can I be happy?

How can I be happy

How can I be happy? How can I be happy, I have MS (Multiple Sclerosis), Sarcoidosis, and chronic headaches. Pain is a constant in my life. In fact, after over 3 years of being in pain, I have forgotten what it is like, not to be in pain. My joints Continue Reading

Tip 5 – Adjust to the new normal

Adjust to the new normal

The new ‘normal’ I cannot walk any more!! I am in constant pain!! These are some of the new realities for people with a chronic illness, the new ’normal’. You no longer have the luxury of being able to hop out of bed and go for a long walk. Everything Continue Reading

Tip 4 – Get Support

Get Support

Get Support? It is my illness. I can manage it on my own. Don’t interfere with my life, you don’t know what it is like. These thoughts have spun around my head so many times in the last 25 years, I have lost count. It can be lonely when the Continue Reading

Tip 3 – Look after your mental health

Look after your mental health “Look after your mental health” is really a sub-category of Tip 2 – Be Healthy. When you have a chronic illness that has no cure your life is thrown upside down. At no stage in your upbringing have you been taught the skills of how Continue Reading

Tip 2 – Be Healthy

How to cope with chronic illness - Be Healthy

Be Healthy?? Be Healthy?? I have a chronic illness, how can I be healthy!! Seriously, it does seem like a contradiction. However, if you really think about it you will realise that of all people someone with a chronic illness cannot afford to live an unhealthy life. You want to Continue Reading

Invisible Symptoms – Living with MS and Chronic Headache

Living With MS and Chronic Headache – Invisible Symptoms My Symptoms When people meet me they often comment how well I look. This is often the case for people who are living with MS, or headaches. There is nothing that you can see that gives you an idea of what Continue Reading

Living With MS – Accepting the Challenge

Living with MS – Accepting the Challenge Accepting the challenge of living with MS is a choice that you have to actively make. 25 years ago when I was diagnosed was when I first realised that this disease required a different mindset to what I had coming out of university, Continue Reading