How do you adjust your life when the rules of your illness change? I share what I am doing now.
Is Patient Centred Healthcare wanted by the Irish health system?
For the last four years I have actively used my experience of being a patient to engage with academics, governmental and commercial organisations to put the patient at the centre...
The Multiple Sclerosis rollercoaster brings fatigue and poor mobility
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its...
Patient engagement: How one pharmaceutical company is failing to adapt.
There is an increasing desire in the research community (public and private) to include patients throughout the medicines development process. This involves a big change is the way these organisations...