The Multiple Sclerosis rollercoaster brings fatigue and poor mobility
It has been several months since I have written a post. I want to write more, but this horrible disease has pushed me into a corner. Fatigue has reared its...
Patient engagement: How one pharmaceutical company is failing to adapt.
There is an increasing desire in the research community (public and private) to include patients throughout the medicines development process. This involves a big change is the way these organisations...
Excluded, again, by the people who say they want to include us
On Thursday, I attended a webinar for an organisation which states they want to support patients becoming innovators. They want people, like me, and our caregivers, to change the health...
The birthday gift I would like to give back!!
Thirty years ago, today, I was diagnosed with Multiple Sclerosis. In the previous November I was in Queens Square London getting a battery of test done. This included an MRI...
Healthy Living Tips for New Wheelchair Users
Pixabay - CCO Licence When you’re new to using a wheelchair, you have a lot of things to get your head around, and it will undoubtedly take a little while...
Procrastinating About Goals Living With MS
Setting goals when you are healthy can be a challenge, as you have so many distractions which can pull you away. These can be time, energy and finances, to name...