This is a post I wrote on the 16 August 2017. I am in too much pain this week to write, so I am re-posting this.
So what should I do? I am faced with a choice, and I know that I have to get some more information, but a decision is looming.
Up to 3 years ago I was virtually symptom-free of my MS. I had been using LDN (Low Dose Naltrexone) for 10 years and all my symptoms had either reduced or disappeared. I was like everyone else. Fantastic, I was very happy.
Then I was in a minor car accident, but I did hear a loud crack in my neck. I seemed fine for the rest of that day, but the following day I had a headache. Then peripheral pain and numbness in both arms. Now I have, as a result of the trauma in the accident, all my old MS symptoms back (heavy leg – causing walking problems, numb hands and face, and fatigue), plus I have a headache that doesn’t disappear that has a pain level of 5/10. It does reach 8/10 in spikes during the day, and gets worse with activity and concentration.
So my pain specialist is suggesting a course of treatment that I am worried about. Today I spoke with my GP, and I think I have been able to clarify my thoughts. But it is frightening. Do I stay with my current level of pain, and do some work that I can do, or do I follow a treatment program that MAY make the pain worse. It could be a success, and I would have no headache, or maybe less of a headache. I also have to consider my MS. Could I get a flare up or relapse of my MS, and as a result get some new symptom. One that I do not know the impact of on me, physically and/or mentally. Scary.
This isn’t a straight forward if I do this, then this other thing will happen. It is more complex and entails risk. The risk of failure could be devastating. At the moment I have a decent routine. I have limits, but I know what they are, and I have learned to live within these. Occasionally I push these limits and pay a temporary price. The great thing is that it is temporary. I will recover. This procedure may not be that simple.
I have a few key questions that I will be asking my pain specialist, and, depending on the answers, I will make a choice. A choice that I will have to live with the consequences of, for the rest of my life. Tricky. In another few weeks, I will make this decision.
Wish me luck, I will need it!!